Current News

A news update about Living With Fibromyalgia from writer/producer, Daneen Akers


Film Wins Platinum Remi Award at 41st Annual Worldfest Houston International Film Festival

Living With Fibromyalgia won the Platinum Remi Award in the documentary category at the
41st Annual Worldfest Houston International Film Festival held in Houston, Texas on April 11-28, 2008. The festival received over 4,500 entries this year in multiple categories. The Platinum Remi Award is a jury award given to the 1st place winner in each category.

"We are pleased that our film is being recognized in a major film festival and that more people are being made aware of fibromyalgia, " said Daneen Akers. "The more people who are aware of this important condition, the more we can do to help our friends and family members with fibromyalgia."

Remi Award

Film Trailer Now on YouTube

We’ve finally joined the rest of the world on YouTube. Now, in addition to watching the latest video of cute cats and laughing babies, you can watch the trailer for our documentary, Living With Fibromyalgia. And, most importantly, you can easily send friends and family members the trailer to help spread the word about this film, which, in the words of Lynne Matallana, president of the NFA (www.fmaware.org), is “a milestone” for the fibromyalgia community and a “must-see for anyone who is living with or knows someone with fibromyalgia.”

You can check it out here: http://www.youtube.com/watch?v=qcLzFHbv4yw



New National Awareness Campaign Features Our Film Participants

Last month I started getting calls and e-mails from friends and family members all over the country saying they’d been watching TV and seen something about fibromyalgia—did I know about this? Yes, and I was thrilled.

A national public service announcement (PSA) about fibromyalgia launched last month, airing on cable and television channels around the country. The 30-second commercial airs on a variety of programs—I saw it recently on the History Channel.

What I was most excited about was seeing two familiar faces—Linda Farwell and Randy Wold, two patients profiled in our documentary who were chosen out of hundred of patients to be two of the faces of fibromyalgia nationwide. Both Linda and Randy have inspiring stories of courage and perseverance to share about their experiences with fibromyalgia. You can read more about both of them on our
participants’ page.

And, what truly left me elated about this new awareness campaign was realizing how many people nationwide were hearing the word “fibromyalgia”—possibly for the first time and getting a glimpse into the lives of men and women who suffer from this illness.

This campaign is a joint effort between the National Fibromyalgia Association and Pfizer. You can learn more about it and see the PSA here:

http://www.fibrohope.org/



Film Website Receives Hope Award

Thanks to
IBS Tales for giving LivingWithFM.com a 2007 Hope Award. These awards are presented to websites that offer positive support and encouragement to any patient of a chronic illness. According to Sophie Lee of IBS Tales, the particularly recognize websites that:

  • Offer accurate information and resources for patients.
  • Encourage sufferers to search for new treatments and hope.
  • Refuse to accept inadequate medical advice or doctors who tell patients to "learn to live with it"!

    We’re proud to have our documentary’s website recognized for bringing hope, encouragement, and resources to patients and their families. Thank you!

    IBS Tales Hope Award


    Archived News



    Film Helps National Fibromyalgia Awareness Day 2007 Receive Largest Media Coverage

    Living With Fibromyalgia was feautured in screenings across the country for National Fibromyalgia Awareness Day on May 12, 2007 and helped contribute to the largest media coverage Awareness Day has ever received. The film played in over 80 locations in venues all across the country. Read more about the success of Awareness Day in the
    NFA's Online Newsletter.



    Over 125 Screenings of Living With Fibromyalgia Planned on May 12

    The
    National Fibromyalgia Association has chosen Living With Fibromyalgia: A Journey of Hope and Understanding to be the centerpiece of this year’s Awareness Day event over the weekend of May 11-13, 2007. Over 125 screenings of the film are already lined up around the country in 30 states over the May 12 weekend.

    Watching the film together as a fibromyalgia patient/survivor community is a powerful experience. "There’s something about being in a theater full of other people who all have fibro or love someone with fibro," says Stephen Eyer, director and producer of the documentary, "Not only do people tend to laugh and cry at the same things, it also starts conversations that hopefully continue long after the film is over."

    Daneen Akers, the film’s narrator, finds community screenings to be empowering. She emphasized that our culture values the big screen and content we see there. "People know that a film is expensive and time-consuming," she says. "Seeing their illness in a film helps give them credibility and helps everyone feel a bit more empowered."

    She also likes the idea of bringing families to group screenings because she’s seen how much it can help doubters, or "closet doubters" change. "I’ve had several people tell me that seeing the film helped their husband, sibling, daughter—you name the relationship—change their opinion. There’s something about hearing another person on a big screen say what you’ve heard your mom say that helps the believability factor."

    For more information about Awareness Day 2007, or to order a hosting packet, please visit: http://www.fmaware.org/may12.htm



    Filmmakers Given Award by the NFA

    At the San Diego premiere of Living With Fibromyalgia: A Journey of Hope and Understanding, the National Fibromyalgia Association presented Daneen Akers and Stephen Eyer, the producers of the documentary with an Amica or "Great Friend" Award. Lynne Matallana, president of the NFA, said that the Amica Awards are given to individuals who have been "great friends" to the fibromyalgia community.

    Akers and Eyer were surprised and pleased by the award. "This is such an honor," Akers said. "The NFA is a hero in my mind for all that they do for patient awareness and advocacy. To be considered a great friend by them is truly special."



    Host a Screening in Celebration of National Fibromyalgia Awareness Day on May 12, 2007

    We have partnered with the
    National Fibromyalgia Association to help spread the word about fibromyalgia for the 2007 National Fibromyalgia Day. Help get the word out about fibromyalgia by hosting a screening in your local theater, community center, or your own living room!

    The National Fibromyalgia Association has chosen Living With Fibromyalgia: A Journey of Hope and Understanding to be part of their Focus on Fibromyalgia campaign for the 2007 National Fibromyalgia Awareness Day during the weekend of May 11-13, 2007. Let your local community know about fibromyalgia by purchasing an Awareness Day Packet from the NFA. The packet includes everything you need to host a screening of the film and help get the word out to your friends and family, local community, and the media about fibromyalgia including a copy of the film, postcard invitations, flyers, and a CD with helpful templates.

    Also, be sure to sign-up as a host with Brave New Theaters to list your screening so others in your area can attend your event. It's free to join and a great resource for letting others know about your event. For more information, or to order a hosting packet, please visit: http://www.fmaware.org/may12.htm.